Being a Mom Free to Parent despite Parkinson’s: by Maria De Leon

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 “We do not know what to do, but our eyes are on you…” 2 Chronicles 20:12

When was the last time you heard another mom say: ‘This mom thing is a breeze, I feel no pressure what so ever?

Never!  Right?  Whether you are a seasoned mom or a new mom, there are always challenges to be met. Just when you think you got it all figured out some new unexpected situation pops out of nowhere and puts your patience, and skills to the test. Moms are under so much pressure to be a “good mom” and be “enough” for our kids that it can feel like a full time job. Now throw in parenting while juggling living with a chronic illness like Parkinson’s.

If you are like me most days you stumble out of bed reaching for your medicines through squinted burning eyes, (cause you just went to sleep less than 2 hours ago), feeling incredibly frustrated because not only are you stiff, slightly confused, off balance, and shaky; but now you have a mess all over the floor from trying to open the medicine bottles in a hurry!

Anyone else have days like this they would like to share? Or you may feel like a fiery breathing dragon when our kids are rushing us and demanding our full attention to help them get their day started when all you want to do is go back to sleep or be left alone. Of course our initial reaction might be a bit harsh –often being labeled as ‘irritable’ or ‘yell-y’ by our kids. We might feel the answer lies in a good exorcism from this PD demon that has taken over our lives without our consent. I have heard from other young women with PD say that they feel like a fiery lady or monster because they can’t stop being cranky, irritable, with a short fire fuse.

So, the pressure builds making us feel like we are not up to the task or that we might just implode at any given moment. After all there are meals to cook, diapers to change, college applications to complete, recitals to attend, appointments to keep, emails to check, schedules to coordinate, hugs to give and that’s just the easy stuff. Don’t get me started on the real tough stuff we got to live with making our brain’s and bodies do what we want them to do when we want to do it.

If this is you my dear friend, take a deep breath and realize that you are not alone. You my friend are more than enough just the way you are! We do not have to be perfect or have all the answers, we simply have to be present in the lives of your children and accept God’s grace for our lives. Our Goal is not to be perfect and have everything under control rather show our children that despite our weaknesses, flaws and ever changing illness. We are more than enough for our kids even on those days we feel the least lovely or lovable because ONLY God is big enough to bear the burdens inflicted by our illnesses that weigh upon us. After all the disease is not their fault and if you feel free to live your life to the fullest despite its limitations your kids will take a cue from you and learn to handle challenges head-on with a positive outlook.

So today, I want you to hug your children tell them you love them & breath in Grace.

@copyright2019

All rights reserved By Maria De Leon MD

Fashion is a universal language :word search: By Maria De Leon

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“Fashion is art and you are the canvas!”

Enjoy a leisurely Sunday afternoon sipping your favorite beverage curled up on your favorite couch. Relax let your mind go free & Remember that you are fabulous!! Life isn’t perfect but your outfit can be because it’s a reflection of who you are inside.

BOLENNAHCOCOC
INFLACISMIHWV
PCQKLMUAMUCOY
JEOSCMPDJLNCX
VRNSIZRRENFAK
SFFCTZAELWOTC
LUIASIDYBORWS
MDRPSAHARGAE
EEVIOMEECELHS
NELUPBCBTKSP
TSDLZPAVAJAMU
IEZIULOBELUZZ
RKIRPGLGEPRS
DCNEUELYTSTR
HUREDMEPCOAA
JRUNWAYWOMPR
ITJYSCGBOACE
NSBEYNNYKGLR
GNVCNJITAAARS
LOENALLHRZSEG
OLAFABGTISHA
MVIFNXIKNYABZ
EDIRCRXEJNNFQ
TATEYBKSXIHWE
RDTTNAGELEYMZ
ZEMOMRTOMXPPZ
UCOATSRAECREIF
XTWUAZSAGCNWOG
WCMICHAELKORS
FEAAGAICNELAB

WORD LIST:

ART

AUDREY HEPURN BAGS

BALENCIAGA BLING

BOOTS BRIGHT

CAROLINA HERRERA

CATWALK CLASSY COATS

COCO CHANNEL CONFIDENT CROWN ELEGANT ETERNAL EYELASHES

FIERCE GOWN IRREPLACEABLE MAGAZINES MICHAEL KORS

MOONSTRUCK PERFUME PRADA PUMPS RADIANCE

RED LIPSTICK RUNWAY SCARVES SEXY SOUL STYLE TIFFANYs

VELVET VOGUE WHIMSICAL

Stay tuned for more fun puzzles and activities in my upcoming publication of Parkinson’s DIVA:Hello Possibilities – a Journal for everyday life with PD.

@copyright 2019

all rights reserved By Maria De Leon MD

Being S.M.A.R.T with your Goals: By Maria De Leon

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“It’s a new dawn, it’s a new day, is a new life for me”, are the words that I want everyone to shout out with me this today! Although, half of the first month of the new year has already swooshed by, there is still time to think about our goals for the year and how we will manage while trying to battle an all encompassing disease. A decade ago, I was feeling unhappy and trapped although seemingly I had it all. Unfortunately, it took a devastating illness to make me realize what was important in my life. Even though the road has been bumpy and full of perils at times it has also been extremely rewarding giving me a new lease on life. This year as I begin not just a new year but also a new decade in my life I hope to continue reaching new goals and soaring to new heights along with all of you.

But in order for us to continue climbing and growing as people and showing our illnesses that we will not be hostage or defeated by Parkinson’s, or any other chronic illness we must start by being S.M.A.R.T. in other words in order to keep moving forward we must set goals that are:

Specific: Make time for what really matters to YOU, your family, & God! Rest, eat well and take medicines on time.

Moderate: Don’t over extend yourself. Remember that we unlike others have even less energy and less mental stamina at times so we should choose our projects carefully. Start small on a goal or project and build your success by mastering that one thing at a time. We can’t just get up one day and expect to write a novel if never written before (believe me I tried- it took a lot of work). There is a learning curve to everything worth doing even for us to overcome our physical and mental impediments.

Achievable: Focus on reaching plausible goals- stop falling, stop choking, exercise once a week etc. Always act and think in terms of what you CAN do and achieve rather than on what you CANNOT do. Example, this week I will try not to miss my noon dosages. Instead, I will set an alarm to remind me to take my medications as scheduled.

Recordable:  Remember that you cannot manage what you can’t objectively record. Go ahead keep a diary of your progress (or lack of). this will make you accountable. This will help you and your doctor know what you must work on together.

Time-Specific: Review your goals monthly, weekly if struggling. This way you can trouble shoot and change direction with greater ease if having trouble. This requires introspection and being honest with oneself. Healing begins from inside out after all.

If you are S.M.A.R.T in all areas of your life not just those related to your illness you can achieve anything and really be able to shout …”I am feeling good today!” Just as I have learned. So stop procrastinating, feeling sorry for yourself and take back control of your life and start living to the fullest. It won’t be easy but it will be very rewarding I promise.

Sources:

Lyrics by Michael Buble _ “I am feeling good”; ‘The word for you today” by Bob Gass

@copyright2019

All Rights reserved by Maria De Leon MD

 

 

Developing a New Vision for the New Year!By Maria De Leon

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“Where there is no vision people will perish.” Proverbs 29:18

This year as I renew my strength and hope in God, I ponder on all the good and bad things that happened last year. Despite the losses and tribulations. I am grateful for all the lessons learned, new friends and adventures had along the way.
After a few months of down time following a string of doctors’ visits, myriad of new tests along with new lupus (SLE) diagnosis to compliment my Parkinson’s (which was beginning to feel lonely), it is time to start a new chapter in my life. As all the pages of the New Year remain blank, I think about developing a new vision that will provide me with endless stories, adventures, trials and triumphs that will comprise a new chapter. This process will be one more stepping stone in achieving a new dream. As I sit quietly contemplating of what my direction should be next waiting on God to lead the way I think about the importance of having a dream for all us especially for those of us who live with chronic illnesses in our lives.
The life lessons involved in making a dream or goal come true are the same lessons we must learn as patients.
When we develop a vision the same tests required to bring that dream into fruition are the same steps required to overcome living with a chronic illness. If you can find a dream and make it come true you can essentially do anything!
But first one must have a dream in order to make it come true.
Once my dream was to become a neurologist. Having achieved that dream has giving me the strength to keep fighting in the midst of many physical and emotional new obstacles. I discovered that a vision is what gives us direction, creativity and resilience.
Without it we run the risk of becoming passive, aimless, and vulnerable to giving up.
Thus, it is important for all of us to have a vision. Is not always clear what our goal should be what our next step should be or what direction to take. It took me a couple of years after my Parkinson’s diagnosis to find a clear new purpose in my life- keep advocating for my patients and all PD around the globe.
Before I could do this like now, I must first wait to have a new goal (vision). This requires patience, discipline and above all the ability to overcome challenges (for us this means often times overcoming physical and emotional limitations).
Is not easy to go after a vision.
I am sure there is something you worked hard to get. Remember the thrill of achievement and accomplishment? I believe you can do it again if you just set your mind to it.
Now as we stand on the horizon of a new unexplored chore, we need to be mindful of passing the following 4 tests that will help us overcome any obstacles this illness or any other curve life could throw our way.
1. Faith Test …we must be strong and believe in a better tomorrow even when everyone around us says there is no way you can make it. I am testament of being relentlessness …even when all the doctors prognosis have been grim I am still standing here by grace of God and still BELIEVE in a cure.
2. Patience Test …I have learned that in life like in science nothing happens overnight. We must learn to wait on God’s time not our own. Yet, having said this many great strides in neurology have been made in the right direction to making peoples life’s better.
3. Strength Test…Sometimes we may find ourselves discouraged alone frightened devoid of family and friends with no support group. We have all felt this way at one point or another. This is the time to remain strong in your convictions. Think about how much you have overcome and how far you have traveled. You can certainly do it again if you don’t give room to negative thought. My motto and yours should be-This too shall pass. I have been through many difficult times which I did not think I could or would survive. Surely, I cried but I did not die. Once the tears stopped the sun came out again and I learned to be happy once more. I have learned that even when one dream died there are many more inside of me and that my life has so many facets, it is much more than any one dream or any one illness I might have.
4. Focus Test…We can easily be derailed and deterred if we focus inward on us instead of outwards towards helping others. If we concentrate on helping others and keep moving forward even at a crawls pace we can climb a mountain. It all begins with a single positive thought- “I can & I will”

So today, I am encouraging everyone to follow these steps. In the meantime keep your spirit up and your gifts and talents sharpened so when the times comes to reach your vision you will not be defined by any illness.

Happy New Year to all my friends, families and followers!

@copyright2019
All rights reserved By Maria L. De Leon