Parent’s are like glue even when you can’t see them or even when you don’t want them there – they will always be there holding on to their precious children no matter how grown they are or think they are.
When my daughter was a toddler, I used to read her favorite stories at bedtime. One of her favorite stories was the “Runaway Bunny” by Margaret Brown
She has always had an adventurous spirit, not unlike mine. she has always looked for any opportunity to go to new places and discover new things. I guess that’s why she is fascinated by the sea. However, she has always known that no matter how far she went or how sick I got I would be like that bunny’s mother- ever present in her life. Even now as she is spreading her wings in a new direction and flying away from home, she knows that I am never far away. she knows that I will be that tree, that cloud, that wind, that rope that she needs to feel loved and protected.
She has realized that although sometimes I look like nothing much is there as when we have gone to the movies in the middle of the night and I could not stop laughing uncontrollably forcing me to say
“I swear I am not drunk” to the movie clerk who was eyeing me suspiciously. Only to have my children hide from embarrassment or even act like a total ‘air-head‘ when at the last trip after moving my nephew out of his dorm I drove the entire clan to a hotel we had no reservations. There we were 2 cars full to the brim and completely exhausted with reservations to a place I had no earthly idea where with no one to call to ask because the number and confirmation and address I written down did not matching with the place we were at. My brain was fried from traveling all day, my medicines were wearing ‘off ‘and I had a less than helpful clerk who was telling me “sorry but we don’t have you in our system and we have no rooms for the night!”
I had promised the kids we would go swimming. But now, I was not even sure where we would be spending the night. I thought about driving home but seemed so much further in the middle of the night. I was in no condition to be driving home nor all over the city for that matter looking for a hotel. Keeping the cool as best I could, I took a deep breath and took an extra dose of levodopa. Maybe my brain would work better, I thought. I then began making phone calls to various hotels in the area and even to other states because the city we were in is also in North and South Carolina and perhaps I had called them by accident while I made the reservations. I was trying to keep the calm watching the gang who was tired of sitting in the cars and were now sprawled out all over the lobby.
After what seemed an eternity, I got a call from an unknown number. Usually I don’t answer numbers I don’t recognize but was desperate. I answered not knowing who was on the other side. to my surprise I heard a worried man’s voice. “Is this Mrs. De Leon?” he said. I answered in the affirmative. Before i had chance to ask who this was he chimed in “I was getting worried about your arrival, so I thought I call you and check on you.” Salvation had come. I was overwhelmed shouting kids get up we found our lodging or rather it has found us.
I have traveled all over the world, and not once did I have anyone from a hotel call me to see if i was still coming and believed me I have missed a few planes. I knew this was God’s angel looking out for us – his children. Like the runaway bunny, I too know that no matter where I go or even try to go God will be there to show his love and his everlasting presence.
Of course, when we finally got to the new hotel, which was quite nice, we finally got to devour the graduation cupcakes which had been delivered all the way from the famous Georgetown Cupcake bakery! Sprawled all over the nice beds and sofas, everyone poked fun for what had just transpired. finishing her cupcake and milk with sleepy eyes my daughter whispered “Thanks for being always being there mom even when you are too much!”
If you are a parent with PD like me, I know that you will do anything for your kids even if you can barely move or think. Don’t ever stop showing them that your love is bigger than the Parkinson’s. If you are a child whose parent has PD make sure and thank them for caring and loving you despite the fact that at times just caring for themselves is all the energy they have.
Remember, that in the end the “runaway bunny” discovered that happiness and safety are usually found at home with the people you love most despite any physical or mental limitations they might have.
all rights reserved by Maria De Leon MD