Being a Mom Free to Parent despite Parkinson’s: by Maria De Leon

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 “We do not know what to do, but our eyes are on you…” 2 Chronicles 20:12

When was the last time you heard another mom say: ‘This mom thing is a breeze, I feel no pressure what so ever?

Never!  Right?  Whether you are a seasoned mom or a new mom, there are always challenges to be met. Just when you think you got it all figured out some new unexpected situation pops out of nowhere and puts your patience, and skills to the test. Moms are under so much pressure to be a “good mom” and be “enough” for our kids that it can feel like a full time job. Now throw in parenting while juggling living with a chronic illness like Parkinson’s.

If you are like me most days you stumble out of bed reaching for your medicines through squinted burning eyes, (cause you just went to sleep less than 2 hours ago), feeling incredibly frustrated because not only are you stiff, slightly confused, off balance, and shaky; but now you have a mess all over the floor from trying to open the medicine bottles in a hurry!

Anyone else have days like this they would like to share? Or you may feel like a fiery breathing dragon when our kids are rushing us and demanding our full attention to help them get their day started when all you want to do is go back to sleep or be left alone. Of course our initial reaction might be a bit harsh –often being labeled as ‘irritable’ or ‘yell-y’ by our kids. We might feel the answer lies in a good exorcism from this PD demon that has taken over our lives without our consent. I have heard from other young women with PD say that they feel like a fiery lady or monster because they can’t stop being cranky, irritable, with a short fire fuse.

So, the pressure builds making us feel like we are not up to the task or that we might just implode at any given moment. After all there are meals to cook, diapers to change, college applications to complete, recitals to attend, appointments to keep, emails to check, schedules to coordinate, hugs to give and that’s just the easy stuff. Don’t get me started on the real tough stuff we got to live with making our brain’s and bodies do what we want them to do when we want to do it.

If this is you my dear friend, take a deep breath and realize that you are not alone. You my friend are more than enough just the way you are! We do not have to be perfect or have all the answers, we simply have to be present in the lives of your children and accept God’s grace for our lives. Our Goal is not to be perfect and have everything under control rather show our children that despite our weaknesses, flaws and ever changing illness. We are more than enough for our kids even on those days we feel the least lovely or lovable because ONLY God is big enough to bear the burdens inflicted by our illnesses that weigh upon us. After all the disease is not their fault and if you feel free to live your life to the fullest despite its limitations your kids will take a cue from you and learn to handle challenges head-on with a positive outlook.

So today, I want you to hug your children tell them you love them & breath in Grace.

@copyright2019

All rights reserved By Maria De Leon MD

Fashion is a universal language :word search: By Maria De Leon

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“Fashion is art and you are the canvas!”

Enjoy a leisurely Sunday afternoon sipping your favorite beverage curled up on your favorite couch. Relax let your mind go free & Remember that you are fabulous!! Life isn’t perfect but your outfit can be because it’s a reflection of who you are inside.

BOLENNAHCOCOC
INFLACISMIHWV
PCQKLMUAMUCOY
JEOSCMPDJLNCX
VRNSIZRRENFAK
SFFCTZAELWOTC
LUIASIDYBORWS
MDRPSAHARGAE
EEVIOMEECELHS
NELUPBCBTKSP
TSDLZPAVAJAMU
IEZIULOBELUZZ
RKIRPGLGEPRS
DCNEUELYTSTR
HUREDMEPCOAA
JRUNWAYWOMPR
ITJYSCGBOACE
NSBEYNNYKGLR
GNVCNJITAAARS
LOENALLHRZSEG
OLAFABGTISHA
MVIFNXIKNYABZ
EDIRCRXEJNNFQ
TATEYBKSXIHWE
RDTTNAGELEYMZ
ZEMOMRTOMXPPZ
UCOATSRAECREIF
XTWUAZSAGCNWOG
WCMICHAELKORS
FEAAGAICNELAB

WORD LIST:

ART

AUDREY HEPURN BAGS

BALENCIAGA BLING

BOOTS BRIGHT

CAROLINA HERRERA

CATWALK CLASSY COATS

COCO CHANNEL CONFIDENT CROWN ELEGANT ETERNAL EYELASHES

FIERCE GOWN IRREPLACEABLE MAGAZINES MICHAEL KORS

MOONSTRUCK PERFUME PRADA PUMPS RADIANCE

RED LIPSTICK RUNWAY SCARVES SEXY SOUL STYLE TIFFANYs

VELVET VOGUE WHIMSICAL

Stay tuned for more fun puzzles and activities in my upcoming publication of Parkinson’s DIVA:Hello Possibilities – a Journal for everyday life with PD.

@copyright 2019

all rights reserved By Maria De Leon MD

Being S.M.A.R.T with your Goals: By Maria De Leon

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“It’s a new dawn, it’s a new day, is a new life for me”, are the words that I want everyone to shout out with me this today! Although, half of the first month of the new year has already swooshed by, there is still time to think about our goals for the year and how we will manage while trying to battle an all encompassing disease. A decade ago, I was feeling unhappy and trapped although seemingly I had it all. Unfortunately, it took a devastating illness to make me realize what was important in my life. Even though the road has been bumpy and full of perils at times it has also been extremely rewarding giving me a new lease on life. This year as I begin not just a new year but also a new decade in my life I hope to continue reaching new goals and soaring to new heights along with all of you.

But in order for us to continue climbing and growing as people and showing our illnesses that we will not be hostage or defeated by Parkinson’s, or any other chronic illness we must start by being S.M.A.R.T. in other words in order to keep moving forward we must set goals that are:

Specific: Make time for what really matters to YOU, your family, & God! Rest, eat well and take medicines on time.

Moderate: Don’t over extend yourself. Remember that we unlike others have even less energy and less mental stamina at times so we should choose our projects carefully. Start small on a goal or project and build your success by mastering that one thing at a time. We can’t just get up one day and expect to write a novel if never written before (believe me I tried- it took a lot of work). There is a learning curve to everything worth doing even for us to overcome our physical and mental impediments.

Achievable: Focus on reaching plausible goals- stop falling, stop choking, exercise once a week etc. Always act and think in terms of what you CAN do and achieve rather than on what you CANNOT do. Example, this week I will try not to miss my noon dosages. Instead, I will set an alarm to remind me to take my medications as scheduled.

Recordable:  Remember that you cannot manage what you can’t objectively record. Go ahead keep a diary of your progress (or lack of). this will make you accountable. This will help you and your doctor know what you must work on together.

Time-Specific: Review your goals monthly, weekly if struggling. This way you can trouble shoot and change direction with greater ease if having trouble. This requires introspection and being honest with oneself. Healing begins from inside out after all.

If you are S.M.A.R.T in all areas of your life not just those related to your illness you can achieve anything and really be able to shout …”I am feeling good today!” Just as I have learned. So stop procrastinating, feeling sorry for yourself and take back control of your life and start living to the fullest. It won’t be easy but it will be very rewarding I promise.

Sources:

Lyrics by Michael Buble _ “I am feeling good”; ‘The word for you today” by Bob Gass

@copyright2019

All Rights reserved by Maria De Leon MD